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I Am A Parent First

Don’t let the sweetness fool you; there’s some attitude under that cuteness!   It is well established by now that being a special needs parent is challenging. In our case, the food challenges can be...

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The Most Wonderful Time of the Year

I had a whole big post written for today, talking about how Christmas is different for FPIES families. How we have to eschew certain traditions and alter others so that the Christmas’s we create for...

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Frugal Friday – Regift Your Kids Presents To Them

  Another Christmas has come and gone, and I think we can all agree on one thing: if you have kids, right now it looks like a toy store vomited all over your house! Despite lack of funds and/or desire...

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Mesenteric Lymphadenitis, aka How To Make Parents Insane In One Day

Weekend before last, Jed came down with a mild form of the stomach bug that has been working its way through the GI system of America this month. Because I knew about the bug, I didn’t go to the...

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FPIES, Fructose Malabsorption and a Virus: 3 Natural Ways to Relieve...

It’s Friday. I’m not doing a Frugal Friday post today. Why? Because we’ve been invaded by a virus and I’ve been busy tending to two sick little boys. Not only have I not had time to sit down and...

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Ten Reasons Why Sick Kiddos Suck

The boys in a moment of high spirits and feeling good during an Epsom Salt bath yesterday. Five minutes later they were both crying and whining for pain relief. Fun. It is Monday and the kiddos are...

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Rocephin NON-Reaction?

Last week, when we needed to give Rocephin shots to Zac thanks to a double ear infection, I was sure we were about to endure another FPIES reaction. After all, he’d reacted to his last round of shots....

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The Secret Worry of Rare Disease Parents

This is something that has been on my mind for a long time, but I’ve held off writing about it because…well, it’s hard to write about. Parents, by design, have to live with a certain degree of worry....

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Why Mom’s Should Water Our Own Roots First

As a Flight Attendant, I’m well-versed in the concept of “take care of yourself first, then take care of everyone else”. It’s taught to us from our first day of training on: we can’t take care of the...

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The Incredible Vanishing Woman

I wrote almost all of this post back on January 29, 2018. It needed some editing and and good conclusion, and somehow I never got around to doing that. So here is what I wrote in January; everything...

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